Focus on rare genetic condition in children
1 JANUARY 2003
An international expert on the management of behaviour in children with a rare genetic condition will headline a one day workshop at Charles Sturt University (CSU) in Wagga Wagga. Ms Brenda Finucane, a genetic counsellor and Executive Director of Elwyn Genetics in the USA will address the workshop, Strategies for Managing Children with Smith-Magenis Syndrome (SMS) from 9.30am to 5pm on Friday 19 February. The Syndrome is a rare disorder which can lead to a series of physical, developmental and behavioural challenges. Initiated by the CSU Faculty of Arts and hosted by the Schools of Humanities and Social Sciences and Biomedical Sciences at CSU in Wagga Wagga, the workshop aims to raise awareness of SMS in Australia. “Although SMS is relatively rare, it often goes undiagnosed as doctors are not familiar with it,” said CSU researcher Dr Chris Blanchard, who has a child with SMS. “Of all the various genetic syndromes, it is thought that children with SMS are the most difficult to manage due to their characteristic antisocial behaviour.” Families and carers of children with SMS from around Australia will attend the workshop to share their experiences. Also attending are allied health professionals and teachers from inland NSW, the NSW Central Coast and Wollongong,
Social
Explore the world of social